A beautiful child's life hangs in the balance. She is one of perhaps a thousand in the USA that have a genetic disorder called Mitochondrial Disease. She was believed to have Mitochondrial Encephalomyopathy Lactic Acidosis, also known as MELAS.
Her most recent trip to the physician overseeing her care indicates she might have a less fatal strain of the genetic disorder which would allow her to live to the age of 25 rather than six years old. Regardless, the problems these children manifest on a regular basis is all a set of parents can handle and then to consider Katie has a brother.
The story goes like this. Although Kate doesn't need to be treated in Great Britain there is a clinic there actively involved in pursuing a genetic treatment for disorders like Katie's. That clinic has treated children from the USA just in the 'nick' of time and they are getting relief. A young girl in a southern state has received the genetic therapy in Britain. She is growing and mental development is improving. She is off her G-tube and eating regular food. There is every hope by her parents she will have a 'good outcome.' The parents see the genetic relief as a miracle cure.
Indeed.
The treatment received in Britain occurs there because it is outlawed by the USA. It is not an astounding feat. The blood type of the child is matched with that of cord blood of a donor infant in the UK. A simple transplant takes place and the child receives an inject of the matching stem cells in bone marrow. The bone marrow begins to produce normals cells with normal function.
The United States of American is hurting it's children because of a misguided approach to genetic research.
Katie needs a cure, too.
The pharmaceutical companies won't receive not one dollar of profit from Mitochondrial Genetic Cures. Just imagine what they will lose when a cure is found for diabetes?
Could it be that Genetic Research might someday save the world from diseases like Bird Flu? There is that possibility.
As a point of interest. One might notice the 'website' on E-Bay that lead you to a small 'Store Front' is now closed. I listed some collector dolls on there. They were very pricey. I didn't care. They weren't going to be sold for nothing or next to nothing. E-Bay received 49 complaints that the Store Front was a scammer and took down Katie's Store Front. What kind of nonsense is that. The dolls are no longer for open sale. They will be contracted privately. Shame on all of you whom complained ! Your loss. Not ours.
Saturday, January 14, 2006
.... the year is 2007
HEADLINES
OUTBREAK.
BIRD FLU
International Deaths Realized
The feared epidemic has arrived. In Tehran, there has been deaths of thirty people in the last 24 hours and more are being admitted to the hospitals at a record pace. The surrounding countries are sealing their borders, but, admittedly there has been border crossings long before the massive outbreak had started. There are admissions to other area hospitals, in Baghdad, Jordan, Damascus as well as an unexpected outbreak at a seaside town at the Caspian. Global shipments of any products out of the area is being scrutinized.
The authorities at the CDC and WHO state there is no vaccine available. However, an obscure genetics company in Iceland states they have a cure. A sugar cube laced with a genetic component stated to stop the virus for 14 days. Long enough to defeat it's spread. The United Nations Security Council is convening this hour with representatives from Iceland and the WHO.
Breaking news to follow.
OUTBREAK.
BIRD FLU
International Deaths Realized
The feared epidemic has arrived. In Tehran, there has been deaths of thirty people in the last 24 hours and more are being admitted to the hospitals at a record pace. The surrounding countries are sealing their borders, but, admittedly there has been border crossings long before the massive outbreak had started. There are admissions to other area hospitals, in Baghdad, Jordan, Damascus as well as an unexpected outbreak at a seaside town at the Caspian. Global shipments of any products out of the area is being scrutinized.
The authorities at the CDC and WHO state there is no vaccine available. However, an obscure genetics company in Iceland states they have a cure. A sugar cube laced with a genetic component stated to stop the virus for 14 days. Long enough to defeat it's spread. The United Nations Security Council is convening this hour with representatives from Iceland and the WHO.
Breaking news to follow.
"The Drugs Don't Work" by Verve
All this talk of getting old
It's getting me down my love
Like a cat in a bag, waiting to drown
This time I'm comin' down
And I hope you're thinking of me
As you lay down on your side
Now the drugs don't work
They just make you worse
But I know I'll see your face again
Now the drugs don't work
They just make you worse
But I know I'll see your face again
But I know I'm on a losing streak
'Cause I passed down my old street
And if you wanna show, then just let me know
And I'll sing in your ear again
Now the drugs don't work
They just make you worse
But I know I'll see your face again
'Cause baby, ooh, if heaven calls, I'm coming, too
Just like you said, you leave my life, I'm better off dead
All this talk of getting old
It's getting me down my love
Like a cat in a bag, waiting to drown
This time I'm comin' down
Now the drugs don't work
They just make you worse
But I know I'll see your face again
'Cause baby, ooh, if heaven calls, I'm coming, too
Just like you said, you leave my life, I'm better off dead
But if you wanna show, just let me know
And I'll sing in your ear again
Now the drugs don't work
They just make you worse
But I know I'll see your face again
Yeah, I know I'll see your face again
Yeah, I know I'll see your face again
Yeah, I know I'll see your face again
Yeah, I know I'll see your face again
I'm never going down, I'm never coming down
No more, no more, no more, no more, no more
I'm never coming down, I'm never going down
No more, no more, no more, no more, no more
[Fade Out]
I'm never going down, I'm never coming down
No more, no more, no more, no more, no more
I'm never coming down, I'm never going down
No more, no more, no more, no more, no more
It's getting me down my love
Like a cat in a bag, waiting to drown
This time I'm comin' down
And I hope you're thinking of me
As you lay down on your side
Now the drugs don't work
They just make you worse
But I know I'll see your face again
Now the drugs don't work
They just make you worse
But I know I'll see your face again
But I know I'm on a losing streak
'Cause I passed down my old street
And if you wanna show, then just let me know
And I'll sing in your ear again
Now the drugs don't work
They just make you worse
But I know I'll see your face again
'Cause baby, ooh, if heaven calls, I'm coming, too
Just like you said, you leave my life, I'm better off dead
All this talk of getting old
It's getting me down my love
Like a cat in a bag, waiting to drown
This time I'm comin' down
Now the drugs don't work
They just make you worse
But I know I'll see your face again
'Cause baby, ooh, if heaven calls, I'm coming, too
Just like you said, you leave my life, I'm better off dead
But if you wanna show, just let me know
And I'll sing in your ear again
Now the drugs don't work
They just make you worse
But I know I'll see your face again
Yeah, I know I'll see your face again
Yeah, I know I'll see your face again
Yeah, I know I'll see your face again
Yeah, I know I'll see your face again
I'm never going down, I'm never coming down
No more, no more, no more, no more, no more
I'm never coming down, I'm never going down
No more, no more, no more, no more, no more
[Fade Out]
I'm never going down, I'm never coming down
No more, no more, no more, no more, no more
I'm never coming down, I'm never going down
No more, no more, no more, no more, no more
January 13, 2006. Ponce Inlet, Florida.
Photographer states :: Lots of lightning on the beach ! There are 10 strikes. Count them. This photo is completely untouched except for some cropping.
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